Sign-On Opportunities

There are many coalitions consisting of other health advocacy or professional medical associations that circulate sign-on opportunities and ABC makes sure our voice joins these other groups in a more powerful alliance. Along with endorsing, we inform the membership about our decision and encourage them to sign-on and provide the contact information for the coalition coordinating the opportunity.

 

Below are the most recent letters the ABC has signed on to:

September 14, 2020 - Letter in support of funding for the NCIPC's National Concussion Surveillance System

The American Brain Coalition signed on to a letter being circulated by The National Association of State Head Injury Administrators (NASHIA) advocating for $5 million in FY 2021 funding to the NCIPC's National Concussion Surveillance System.

August 31, 2020 - Letter in support of fetal tissue use in research

The American Brain Coalition signed on to a letter being sent to the NIH Human Fetal Tissue Research Advisory Board conveying the support of the research, patient, and academic communities for the use of fetal tissue in research.

August 6, 2020 - Letter to support emergency funding for NIH as proposed in Senate HEALS package

The American Brain Coalition signed on to a letter being circulated by the Ad Hoc Group Steering Committee urging negotiators to work quickly to "finalize a bipartisan agreement and to support emergency funding of at least $15.5 billion for the National Institutes of Health (NIH), as proposed in the Senate HEALS package.

August 1, 2020 - Letter outlining recommendations on Medicare coverage

The American Brain Coalition signed on to a letter being circulated by Biogen to CMS outlining the stakeholder group's consensus recommendations on Medicare coverage for AB PET.

July 9, 2020 - Letter in Support of Permanent Telehealth Reform 

The American Brain Coalition signed on to a letter being circulated by Movement Disorders Policy Coalition encouraging Congress to continue to work with CMS to ensure patients and providers can continue to utilize telehealth services. 

June 29, 2020 - Letter Endorsing "Research Investment to Spark the Economy (RISE) Act" (H.R. 7308)

The American Brain Coalition endorses "Dear Colleague" letter sent by Representatives DeGette (D-Colo.), Upton (R-Mich.), Johnson (D-Texas), Lucas (R-Okla.), Eshoo (D-Calif.), and Gonzalez (R-Ohio) regarding the bipartisan “Research Investment to Spark the Economy (RISE) Act” (H.R. 7308).

May 21, 2020 - FOVA Letter on Supplemental Funding Request 

The American Brain Coalition signed on to a FOVA letter to the House and Senate Military Construction, VA, and Related Agencies Appropriations Subcommittee leaders urging inclusion of at least $50 million for VA research in future COVID-19 supplemental funding bills.

April 30, 2020 - Letter encouraging non-profit research relief

The American Brain Coalition signed on to a letter being circulated by The Michael J. Fox Foundation and National MS Society encouraging Congress to provide at least $2 billion in bridge funding to assure the stalled research supported by non-profit organizations, voluntary health associations, science societies, and foundations, can resume once researchers return to their labs.

March 30, 2020 - Letter in support of improved access to care for patients

The American Brain Coalition signed on to two letters being circulated by Aimed Alliance requesting remaining governors and Medicaid directors to take additional steps to improve access to care at this time, especially for patients with high-risk conditions.

March 11, 2020 - Letter in support of TD Awareness Week

The American Brain Coalition signed on to a letter being circulated by the Movement Disorders Policy Coalition Movement Disorders Policy Coalition, a project of the Alliance for Patient Access, in support of recognizing Tardive Dyskinesia Awareness Week.

March 2, 2020 - NABR Letter to House and Senate regarding FY2021

The American Brain Coalition signed on to a letter being circulated by National Association for Biomedical Research regarding FY2021 appropriations negotiations.

February 25, 2020 - Letter endorsing FOVA FY2021 VA Research Recommedation

The American Brain Coalition signed on to a letter being circulated by the FOVA Coalition endorsing the FOVA FY2021 recommedation for the VA research program.  View full list of signed on organizations.

January 28, 2020 - Letter regarding FY 2021 recommendation to increase NIH Funding

The American Brain Coalition signed on to a letter to Ad Hoc Group for Medical Research FY 2021 recommendation of $44.7 billion for the NIH, a $3 billion (7.2%) increase over the FY 2020 program level. View full list of signed on organizations.

November 4, 2019 - Letter regarding EPA's "Transparency Rule" 

The American Brain Coalition signed on to a letter being circulated by the Michael J Fox Foundation supporting the EPA's "Transparency Rule". 

October 11, 2019 - Letter Urging Finalizing of FY 2020 for NIH Funding

The American Brain Coalition signed on to a letter being circulated by the Steering Committee of the AAMC-convened Ad Hoc Group for Medical Research urging House and Senate appropriators to ensure “quick enactment of a Labor-HHS-Education appropriations bill that provides robust, sustained funding for medical research.”

July 10, 2019 - Letter of Support for Improving Seniors’ Timely Access to Care Act 

The American Brain Coalition signed on to a letter being circulated by American Academy of Neurology (AAN) regarding support of the Improving Seniors’ Timely Access to Care Act (H.R. 3107). 

July 10, 2019 - Letter of support for Medical Marijuana Research Act of 2019

The American Brain Coalition signed on to a letter being circulated by the Friends of NIDA regarding support of the Medical Marijuana Research Act 2019. 

June 6, 2019 - NNCSS Sign-on Letter

The American Brain Coalition signed on to a letter being circulated by American Academy of Neurology (AAN) regarding the inclusion of language in the House LHHS appropriations bill that could potentially halt progress on the implementation of the National Neurological Conditions Surveillance System (NNCSS). 

June 6, 2019 - Opposition to amend Section 101 of the Patent Act

The American Brain Coalition has signed on to a letter expressing opposition to the recent proposal to amend Section 101 of the Patent Act.  The draft legislation if enacted would authorize patenting products and laws of nature, abstract ideas, and other general fields of knowledge. Most troubling, the legislation would permit patenting of human genes and naturally-occurring associations between genes and diseases.  Allowing these patents will prevent the discovery of novel treatments for brain diseases. It would also create barriers to patients’ access to potentially lifesaving genomic tests, eliminate access to confirmatory testing and dramatically increase the cost of tests that have benefited from innovation that led to reduce costs of DNA sequencing technology.  

May 6, 2019 - Friends of NIDA CMREA Letter of Support

The American Brain Coalition, along with a number of ABC member organizations, endorsed the Friends of NIDA (National Institute on Drug Abuse) support letter for the newly introduced Cannabidiol and Marijuana Research Expansion Act, which would enable expansion of the scientific research base on cannabis to answer critical questions, such as identifying potential therapeutic effects and possible public health consequences. 

March 25, 2019 - Funding for the Center for Disease Control and Prevention

The American Brain Coalition signed on to House & Senate letters being circulated by the Association of Public Health Laboratories, Council of State and Territorial Epidemiologists, HIMSS, and NAPHSIS, seeking $1 billion over 10 years for the Centers for Disease Control and Prevention (CDC) to allow CDC, state, local, tribal, and territorial health departments to move from a paper-based data collection to an IT system, and resources to recruit and retain skilled data scientists.

March 8, 2019 - Funding for the VA Medical and Prosthetic Research Program

The American Brain Coalition signed on to a letter being circulated by the Friends of VA Medical Care and Health Research (FOVA) for the recommendation of $840 million for the VA Medical and Prosthetic Research program for FY 2020.

January 24, 2019 - Partnership for Part D 6 Protected Classes Letter

The American Brain Coalition signed on to a letter being circulated by the patient and provider community through the Partnership to Protect Part D Access regarding concerns on the Center for Medicare and Medicaid Services' proposed rule.     

January 17, 2019 - Six Protected Classes Advertising Campaign

The American Brain Coalition joined American Cancer Society's Cancer Action Network as a partner in their advertising campaign regarding the 'Six Protected Classes'.     

January 9, 2019 - NDD United's letter to Protect Domestic Programs 

The American Brain Coalition signed on to NDD (nondefense discretionary) United’s letter urging Congress to protect NDD programs from further cuts and to end sequestration.   

October 4, 2018 - Letter of Support for NABR DOT Complaint

The American Brain Coalition filed a letter of support for ABC member, National Association for Biomedical Research (NABR)’s official complaint with the US Department of Transportation regarding the refusal of major airlines to carry animals for the purpose of research. 

September 25, 2018 - Neurological Conditions Surveillance System Thank You

A letter circulated by the The Michael J. Fox Foundation for Parkinson's Research and the National Multiple Sclerosis Society thanking members of Congress for the $5 million appropriation for the Neurological Conditions Surveillance System in the minibus appropriations bill. 

September 10, 2018 - Multi-Society Letter in Support of OSTP Director to Senate Leadership

A letter circulated by the American Association for the Advancement of Sciences (AAAS) supporting the director of OSTP from scientific societies and organizations.  

August 13, 2018 - Patient-Provider Letter to Centers for Medicare and Medicaid Services 

A letter circulated by the American Academy of Neurology, urging the agency to reconsider a proposal in the 2019 Physician Fee Schedule to cut and consolidate Medicare evaluation and management (E/M) services.

July 16, 2018 - Press Release Regarding: Strengthening Transparency in Regulatory Science

A press release circulated by The Michael J Fox Foundation, American Lung Association, Endocrine Society, and AAAS for public health, scientific, and academic groups in response to EPA's proposed "Strengthening Transparency in Regulatory Science" Rule. 

April 13th, 2018 - Friends of NIDA Letter - VA Medicinal Cannabis Research

A letter circulated by Friends of NIDA addressed to Chairman Roe and Ranking Member Walz of the House Committee on Veterans Affairs endorsing the, “VA Medicinal Cannabis Research Act of 2018.”

January 13th, 2018 - Encourage FDA to consider psychiatry as part of the Center for Excellence of Neuroscience

A letter circulated by Mental Health America commending FDA Commissioner Gottlieb on his consideration of a Center of Excellence for Neuroscience and encouraging him to consider psychiatry as part of that center.

December 20th, 2017 - Opposition of Actions which might Impede CDC Research

A letter circulated by The American Neurological Association opposing any action taken by the government to impede the life-saving research conducted by the CDC.

November 8th, 2017 - Appeal for the Orphan Drug Tax Credit

A letter circulated by The National Organization for Rare Disorders (NORD) opposing the proposal from the Senate Finance Committee to diminish the Orphan Drug Tax Credit. 

September 5th, 2017 - Funding for National Neurological Diseases Surveillance System

A letter circulated by The National MS Society and the Michael J Fox Foundation urging Congress and the Administration to work together to raise the budget caps so that vital programs authorized under the 21st Century Cures Act can be funded appropriately through the appropriations process, including the National Neurological Diseases Surveillance System at the Centers for Disease Control and Prevention.  
 

 

American Brain Coalition

P.O. Box 1549 | Maple Grove, MN 55311 | Phone: (763) 557-2913