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There are many coalitions consisting of other health advocacy or professional medical associations that circulate sign-on opportunities and ABC makes sure our voice joins these other groups in a more powerful alliance. Along with endorsing, we inform the membership about our decision and encourage them to sign-on and provide the contact information for the coalition coordinating the opportunity.
Below are the most recent letters the ABC has signed on to:
June 6, 2019 - NNCSS Sign-on Letter
The American Brain Coalition signed on to a letter being circulated by American Academy of Neurology (AAN) regarding the inclusion of language in the House LHHS appropriations bill that could potentially halt progress on the implementation of the National Neurological Conditions Surveillance System (NNCSS).
June 6, 2019 - Opposition to amend Section 101 of the Patent Act
The American Brain Coalition has signed on to a letter expressing opposition to the recent proposal to amend Section 101 of the Patent Act. The draft legislation if enacted would authorize patenting products and laws of nature, abstract ideas, and other general fields of knowledge. Most troubling, the legislation would permit patenting of human genes and naturally-occurring associations between genes and diseases. Allowing these patents will prevent the discovery of novel treatments for brain diseases. It would also create barriers to patients’ access to potentially lifesaving genomic tests, eliminate access to confirmatory testing and dramatically increase the cost of tests that have benefited from innovation that led to reduce costs of DNA sequencing technology.
May 6, 2019 - Friends of NIDA CMREA Letter of Support
The American Brain Coalition, along with a number of ABC member organizations, endorsed the Friends of NIDA (National Institute on Drug Abuse) support letter for the newly introduced Cannabidiol and Marijuana Research Expansion Act, which would enable expansion of the scientific research base on cannabis to answer critical questions, such as identifying potential therapeutic effects and possible public health consequences.
March 25, 2019 - Funding for the Center for Disease Control and Prevention
The American Brain Coalition signed on to House & Senate letters being circulated by the Association of Public Health Laboratories, Council of State and Territorial Epidemiologists, HIMSS, and NAPHSIS, seeking $1 billion over 10 years for the Centers for Disease Control and Prevention (CDC) to allow CDC, state, local, tribal, and territorial health departments to move from a paper-based data collection to an IT system, and resources to recruit and retain skilled data scientists.
March 8, 2019 - Funding for the VA Medical and Prosthetic Research Program
The American Brain Coalition signed on to a letter being circulated by the Friends of VA Medical Care and Health Research (FOVA) for the recommendation of $840 million for the VA Medical and Prosthetic Research program for FY 2020.
January 24, 2019 - Partnership for Part D 6 Protected Classes Letter
The American Brain Coalition signed on to a letter being circulated by the patient and provider community through the Partnership to Protect Part D Access regarding concerns on the Center for Medicare and Medicaid Services' proposed rule.
January 17, 2019 - Six Protected Classes Advertising Campaign
The American Brain Coalition joined American Cancer Society's Cancer Action Network as a partner in their advertising campaign regarding the 'Six Protected Classes'.
January 9, 2019 - NDD United's letter to Protect Domestic Programs
The American Brain Coalition signed on to NDD (nondefense discretionary) United’s letter urging Congress to protect NDD programs from further cuts and to end sequestration.
October 4, 2018 - Letter of Support for NABR DOT Complaint
The American Brain Coalition filed a letter of support for ABC member, National Association for Biomedical Research (NABR)’s official complaint with the US Department of Transportation regarding the refusal of major airlines to carry animals for the purpose of research.
September 25, 2018 - Neurological Conditions Surveillance System Thank You
A letter circulated by the The Michael J. Fox Foundation for Parkinson's Research and the National Multiple Sclerosis Society thanking members of Congress for the $5 million appropriation for the Neurological Conditions Surveillance System in the minibus appropriations bill.
September 10, 2018 - Multi-Society Letter in Support of OSTP Director to Senate Leadership
A letter circulated by the American Association for the Advancement of Sciences (AAAS) supporting the director of OSTP from scientific societies and organizations.
August 13, 2018 - Patient-Provider Letter to Centers for Medicare and Medicaid Services
A letter circulated by the American Academy of Neurology, urging the agency to reconsider a proposal in the 2019 Physician Fee Schedule to cut and consolidate Medicare evaluation and management (E/M) services.
A press release circulated by The Michael J Fox Foundation, American Lung Association, Endocrine Society, and AAAS for public health, scientific, and academic groups in response to EPA's proposed "Strengthening Transparency in Regulatory Science" Rule.
April 13th, 2018 - Friends of NIDA Letter - VA Medicinal Cannabis Research
A letter circulated by Friends of NIDA addressed to Chairman Roe and Ranking Member Walz of the House Committee on Veterans Affairs endorsing the, “VA Medicinal Cannabis Research Act of 2018.”
A letter circulated by Mental Health America commending FDA Commissioner Gottlieb on his consideration of a Center of Excellence for Neuroscience and encouraging him to consider psychiatry as part of that center.
December 20th, 2017 - Opposition of Actions which might Impede CDC Research
A letter circulated by The American Neurological Association opposing any action taken by the government to impede the life-saving research conducted by the CDC.
November 8th, 2017 - Appeal for the Orphan Drug Tax Credit
A letter circulated by The National Organization for Rare Disorders (NORD) opposing the proposal from the Senate Finance Committee to diminish the Orphan Drug Tax Credit.
September 5th, 2017 - Funding for National Neurological Diseases Surveillance System
A letter circulated by The National MS Society and the Michael J Fox Foundation urging Congress and the Administration to work together to raise the budget caps so that vital programs authorized under the 21st Century Cures Act can be funded appropriately through the appropriations process, including the National Neurological Diseases Surveillance System at the Centers for Disease Control and Prevention.